Director, Centre of Genomics and Policy, Faculty of Medicine and Department of Human Genetics, McGill University
Bartha Maria Knoppers, PhD (Comparative Medical Law), holds the Canada Research Chair in Law and Medicine (Tier 1: 2001 – ). She is Director of the Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University. In 2007, she founded the international Population Project in Genomics and Society (P3G) and CARTaGENE Quebec’s population biobank (20,000 indiv.). Former holder of the Chair d’excellence Pierre Fermat (France: 2006 – 2008), she was named Distinguished Visiting Scientist (Netherlands Genomics Initiative) (2009 – 2012) and received the ACFAS prize for multidisciplinarity (2011). She is Chair of the Ethics Working Party of the International Stem Cell Forum (2005 – ); Co-Chair of the Sampling/ELSI Committee of the 1000 Genomes Project (2007 – 2013); Member of the Scientific Steering Committee of the International Cancer Genome Consortium (ICGC) (2009- ); Chair, Regulatory and Ethics Working Group – Co-Founder and Member, Transitional Steering Committee (TSC) of the Global Alliance for Genomics and Health. She holds four Doctorates Honoris Causa, is Fellow of the American Association for the Advancement of Science, of The Hastings Center (Bioethics) and of the Canadian Academy of Health Sciences (CAHS) and Officer of the Order of Canada and of Quebec. She also received an award “Prix Montreal In Vivo: Secteur des sciences de la vie et des technologies de la santé” in 2012 and in 2013 was named “Champion of Genetics” by the Canadian Gene Cure Foundation.
- Medicine 2020:Portable, personalized, informed (June 2010)